... the masses, it is important to ensure that as many ethical issues as possible are resolved. As the course progresses, I find myself becoming increasingly aware of the sheer volume of research appears in the press, and is, therefore, being undertaken every day. In a recent Channel five documentary, 'Extraordinary People', in an episode entitled 'The girls with too much skin', we were fortunate enough to meet two sets of siblings suffering from an extreme skin disease known as 'Harlequin Ichthyosis'. These remarkable children, all of differing ages, were all equipped with full knowledge of their condition and its implications.. However, recent research involving the girls had led to a breakthrough in tracing the faulty gene responsible. This news meant that a treatment could possible soon become available. The parents, medical team and the girls were all fully involved in the decision process regards taking part in the research, and with ...

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